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#accommodation

1 message1 participant0 message aujourd’hui
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Alo Japan

alojapan.com/1230894/hokkaido- Hokkaido to introduce lodging tax of up to RM15 per night from 2026 #Accommodation #Hokkaido #HokkaidoNews #hotels #LodgingTax #news #北海道 SAPPORO, Dec 28 — The government of Hokkaido, Japan’s northern island renowned for its popularity among tourists, will introduce a lodging tax of up to ¥500 (RM15) per night from April 2026, joining a growing number of prefectures and municipalities across Japan using such revenues to improve infrastructure…

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Alo Japan

alojapan.com/1225151/japans-to Japan’s tourist gem Kyoto to hike hotel taxes to appease locals #Accommodation #Japan #JapanTourism #Kyoto #taxes #tourism #tourists Kyoto authorities announced Tuesday plans to hike accommodation taxes as Japan’s ancient capital and the tourist hub seeks to calm grumbles from locals about too many visitors. Lured by its myriad sights and a weak yen, Japan has seen foreign tourism numbers explode in recent years, with arrivals in 2024 e…

Japan's tourist gem Kyoto to hike hotel taxes to appease locals
Public
Aaron

I could use some community advice. I have multiple sleep disorders: apnea, insomnia, and "social jetlag," where my body disregards the local time and acts as if I belong in a timezone several hours behind the local time no matter what I do. I have treatments for these, including a CPAP and medication to sleep at night and be awake in the day, but even so, I am struggling mightily with the early morning meetings with my new job, to the point that being awake for them is ruining my productivity for the rest of the day.

Added to this, I'm autistic, which makes it hard to communicate my needs effectively, and I had a *very* bad experience in a previous job when went to HR about it to request an accommodation. (They forced me to take unpaid medical leave rather than allow me to adjust my work schedule slightly, and I had to interact with a very ableist HR person regularly from then on.)

How do I bring this up with my new boss and find a happy compromise that lets me do my job?

@actuallyautistic
#accommodation

Public
Broadwaybabyto

“Your test results are normal”

“You’re just anxious”

“You’re deconditioned”

“What do you want ME to do?”

“Have you tried worrying less?”

“It’s all in your head”

“Have you been drinking?”

POTS patients spend years hearing comments like this. 

They fight for diagnosis - only to be left disappointed by the lack of support 

I have a good friend who just went through this. Despite my telling her over and over that there’s no cure for POTS - she genuinely thought that she would be the exception. 

That if she could “just” get the diagnosis - she would be cured. 

She believed she wouldn’t end up like me.

When she was finally diagnosed - all the got was a beta blocker and instructions to check online for help with salt and fluids. 

She was told they would follow up in a year - and sent on her way. 

She was absolutely distraught. The reality that she wasn’t the “exception” crushed her.

Here’s the painful truth - very few people are the exception. 

Our medical system is great at handling acute issues - it’s woefully ill equipped for complex chronic ones. 

Often the best you will get is validation and a bandaid.

For those who’ve been healthy their entire life - this is soul destroying. 

It doesn’t matter how many times we tell them that there’s no fix - they do not believe us. 

They’re certain we just aren’t “trying hard enough.”

When they’re forced to confront the reality that we tried just as hard as they did - they’re scared. They feel abandoned. Hopeless. Cheated. 

Cheated out of the life they wanted for themselves. Scared to end up like those “other” people they thought they were better than.

There’s no easy solution to this - it takes time to come to terms with becoming disabled. You have to mourn the life you had and learn to adapt to your new reality. 

Most doctors don’t help patients with this. They diagnose and run. 

No one is coming to save us so we do whatever we can to save each other. 

Patients find support on social media and chronic illness message boards. They reach out to advocacy organizations. They research on their own. 

It takes a lot of spoons to try and learn how to live with chronic illness - and there’s no welcome guide. 

My series on POTS is an attempt to provide a resource to help patients quickly and easily access tips and tools to help them manage their new life as a disabled person. 

Part Three is everything I wish I had known when I was diagnosed - including tips on salt intake, compression stockings, medications, pots-proofing your home and more:

disabledginger.com/p/learning-

The Disabled Ginger · Learning to Live Horizontally - Your Guide to All Things POTSPar Broadwaybabyto
#pots#dysautonomia#chronicillness
Public
Broadwaybabyto

My mega guide to living with POTS/Dysautonomia is here!

I cover everything I learned the hard way over years of living with this condition.

Salt, fluids, compression, medication, mobility aids and all the lifestyle adjustments you can imagine.

Patients can wait years for a diagnosis - being gaslit and dismissed along the way. When they DO get diagnosed - they’re often not given much in the way of support or coping tools.

It can be devastating when you’ve spent years suffering and then assume you’re finally going to get the help you need.

Doctors don’t understand the condition very well - and as a result we learn a LOT from other patients and painful trial and error.

My hope is this guide can serve as a soft place to land and find support, tips and ways to cope and stay safe:

disabledginger.com/p/learning-

The Disabled Ginger · Learning to Live Horizontally - Your Guide to All Things POTSPar Broadwaybabyto
#pots#dysautonomia#chronicillness
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