Mastouille

34 messages18 participants1 message aujourd’hui

Tom Kindlon8/"My reason for resting had shifted from optimising athletic performance to protecting my health, but society praised the former and judged me for the latter"<a href="https://www.thereforme.uk/p/the-importance-of-understanding-rest" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thereforme.uk/p/the-importance-of-understanding-rest</a>Image is from the latest Science for ME weekly update<a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a>

Tom KindlonRecap of “Support Group: Re-introducing Peace, Happiness and Joy to the Illness”, a professionally-facilitated support group organised by the Bateman Horne Center<a href="https://batemanhornecenter.org/wp-content/uploads/2025/06/20250415-Support-Group-Recap.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://batemanhornecenter.org/wp-content/uploads/2025/06/20250415-Support-Group-Recap.pdf</a><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longcovid</a> <a href="https://disabled.social/tags/pwme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwme</a> <a href="https://disabled.social/tags/cfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfs</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a>

Tom Kindlon7/ “Come the next Olympics, we will celebrate the medalists for their extraordinary performances. But let’s also create space to honour something much less visible, yet no less demanding, disciplined, or full of sacrifice: the work of rest for those with <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a>”<a href="https://disabled.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longcovid</a> <a href="https://disabled.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a>

Tom Kindlon3/I had been taking a lower dose for a number of years but then read of one or more trials on post viral fatigue syndrome of higher doses.<a href="https://disabled.social/tags/PVFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PVFS</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Tom Kindlon6/ From "The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"<a href="https://www.thereforme.uk/p/the-importance-of-understanding-rest" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thereforme.uk/p/the-importance-of-understanding-rest</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a>

Tom Kindlon2/I've been feeling the best I've felt in 22 years. I had put it down to better pacing with less cognitive work but this may be a factor. Creatine doesn't dissolve well so I do have to knock it back which is a little annoying.<a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Tom KindlonCreatine and Post-Viral Fatigue Syndrome: Can a Gym Supplement Support Brain Recovery?<a href="https://propstmetabolichealth.substack.com/p/creatine-and-post-viral-fatigue-syndrome" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://propstmetabolichealth.substack.com/p/creatine-and-post-viral-fatigue-syndrome</a>Comment: I've been taking 12 g/day of Creatine for many months now (with a break every 6 weeks). This may be contributing to me feeling better.<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LC</a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Covidlonghaulers</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longhaulers</a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVIDBrain</a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NeuroPASC</a>1/

Tom KindlonSeeing the Invisible: Illuminating brain function in ME/CFS & <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a><a href="https://youtu.be/3-54JAgZ2x8" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://youtu.be/3-54JAgZ2x8</a>Dr Chris Armstrong & his team at OMF’s Melbourne ME/ <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> Collaboration are investigating the link between neuroinflammation, cerebral blood flow, & dysregulated hormones in <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>, <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#POTS</a>, & Long <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID</a><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@pots</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/CovidBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidBrain</a> <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID19</a> <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SARSCoV2</a> <a href="https://disabled.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidIsNotOver</a> <a href="https://disabled.social/tags/auscovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#auscovid19</a> <a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@auscovid19</a>

Initiative #ProtectTheKids.<a href="https://nrw.social/@Stern" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@Stern</a> TV vom 11.06.2025 u.a. zum Thema "ME/CFS bei Kindern: Wenn chronische Erschöpfung das Leben bestimmt".<a href="https://nrw.social/tags/sternTV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#sternTV</a> hat zwei junge ME/CFS-Betroffene & ihre Familien besucht. Link zu Sendung (Beitrag ab min. 30:41): <a href="https://plus.rtl.de/video-tv/shows/stern-tv-791695/2025-6-1030551/episode-22-sendung-vom-11062025-997562" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://plus.rtl.de/video-tv/shows/stern-tv-791695/2025-6-1030551/episode-22-sendung-vom-11062025-997562</a><a href="https://nrw.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>via <a href="https://mastodon.social/@FatigatioeV" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@FatigatioeV</a>

Tom Kindlon5/ From "The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"<a href="https://www.thereforme.uk/p/the-importance-of-understanding-rest" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thereforme.uk/p/the-importance-of-understanding-rest</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dysautonomia</a> <a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@dysautonomia</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a>

Tom KindlonSome low-energy products for washing one's hairFrom: May 2025 Caregiver Call Summary Links: <a href="https://www.walgreens.com/store/c/walgreens-rinse-free-shampoo-cap/ID=prod6293401-product" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.walgreens.com/store/c/walgreens-rinse-free-shampoo-cap/ID=prod6293401-product</a><a href="https://www.medline.com/product/ReadyBath-RinseFree-Shampoo-and-Conditioning-Caps/Z05-PF66410?question=Shampoo%20cap&" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.medline.com/product/ReadyBath-RinseFree-Shampoo-and-Conditioning-Caps/Z05-PF66410?question=Shampoo%20cap&</a><a href="https://www.walgreens.com/store/c/cleanis-aqua-pre-moistened-wash-glove,-shampoo/ID=prod6187681-product" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.walgreens.com/store/c/cleanis-aqua-pre-moistened-wash-glove,-shampoo/ID=prod6187681-product</a><a href="https://www.cvs.com/shop/cvs-health-pre-moistened-no-rinse-shampoo-glove-prodid-920210?skuId=920210&cgaa=QWxsb3dHb29nbGVUb0FjY2Vzc0NWU1BhZ2Vz&gStoreCode=R10694&gQT=1" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.cvs.com/shop/cvs-health-pre-moistened-no-rinse-shampoo-glove-prodid-920210?skuId=920210&cgaa=QWxsb3dHb29nbGVUb0FjY2Vzc0NWU1BhZ2Vz&gStoreCode=R10694&gQT=1</a>Hashtags: <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#POTS</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@pots</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a>

Tom Kindlon4/ From "Emergency departments aren’t trained for <a href="https://disabled.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a> [& <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>] —& patients are paying the price" by <a href="https://mastodon.social/@thesicktimes" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@thesicktimes</a><a href="https://thesicktimes.org/2025/06/02/emergency-departments-arent-trained-for-long-covid-and-patients-are-paying-the-price/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://thesicktimes.org/2025/06/02/emergency-departments-arent-trained-for-long-covid-and-patients-are-paying-the-price/</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://mastodon.social/@thesicktimes" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@thesicktimes</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Tom Kindlon4/From "The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"<a href="https://www.thereforme.uk/p/the-importance-of-understanding-rest" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thereforme.uk/p/the-importance-of-understanding-rest</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a>

Tom Kindlon3/ From "Emergency departments aren’t trained for <a href="https://disabled.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a> [& <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>] —& patients are paying the price" by <a href="https://mastodon.social/@thesicktimes" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@thesicktimes</a><a href="https://thesicktimes.org/2025/06/02/emergency-departments-arent-trained-for-long-covid-and-patients-are-paying-the-price/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://thesicktimes.org/2025/06/02/emergency-departments-arent-trained-for-long-covid-and-patients-are-paying-the-price/</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

RiffReporterWie schreitet die <a href="https://mastodon.social/tags/Forschung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Forschung</a> zu postviralen Erkrankungen voran? Wissenschaftsjournalist <a href="https://metalhead.club/@martinruecker" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@martinruecker</a> mit einem Überblick über den aktuellen Stand der Forschung zu <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>, <a href="https://mastodon.social/tags/PIAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PIAS</a>, <a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> und Co. <a href="https://mastodon.social/tags/covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#covid</a> <a href="https://mastodon.social/tags/gesundheit" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#gesundheit</a> <a href="https://mastodon.social/tags/postviral" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postviral</a> <a href="https://www.riffreporter.de/de/wissen/long-covid-mecfs-pais-postvirale-erkrankungen-forschung-versorgung" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.riffreporter.de/de/wissen/long-covid-mecfs-pais-postvirale-erkrankungen-forschung-versorgung</a>

Chronic Illness Humor FunnyArtist: <a href="https://mastodon.social/@poorlydrawnlines" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@poorlydrawnlines</a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesslife</a> <a href="https://mastodon.social/tags/funnycomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#funnycomics</a> <a href="https://mastodon.social/tags/lifecomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#lifecomics</a> <a href="https://mastodon.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fatigue</a> <a href="https://mastodon.social/tags/chronicfatiguesyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicfatiguesyndrome</a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfs</a> <a href="https://mastodon.social/tags/Mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Mecfs</a> <a href="https://mastodon.social/tags/sotired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#sotired</a> <a href="https://mastodon.social/tags/tiredallthetime" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#tiredallthetime</a> <a href="https://mastodon.social/tags/alwaystired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#alwaystired</a>

Initiative #ProtectTheKidsDie großartige <a href="https://nrw.social/tags/Liegefrosch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Liegefrosch</a>-Charity-Tour sammelt seit vier Wochen Spenden für <a href="https://nrw.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>-Patient:innen - mit Erfolg: Schon mehr als 25.000 Euro sind zusammengekommen, berichtet heute <a href="https://bsky.brid.gy/r/https://bsky.app/profile/stefanhemler.bsky.social" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@stefanhemler.bsky.social</a> in seinem <a href="https://nrw.social/tags/Liegefrosch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Liegefrosch</a>-Porträt auf <a href="https://mastodon.social/@dmznews" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@dmznews</a>🐸💚Bis 20. Juni kann noch gespendet werden (Move-Spendenlink im Text👇) - bitte unterstützt den <a href="https://nrw.social/tags/Liegefrosch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Liegefrosch</a>-Endspurt🙏<a href="https://www.dmz-news.eu/2025/06/14/endspurt-der-liegefrosch-charity-tour-schon-%C3%BCber-25-000-euro-spenden-f%C3%BCr-me-cfs-patient-innen/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.dmz-news.eu/2025/06/14/endspurt-der-liegefrosch-charity-tour-schon-%C3%BCber-25-000-euro-spenden-f%C3%BCr-me-cfs-patient-innen/</a>

Tom Kindlon3/From "The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"<a href="https://www.thereforme.uk/p/the-importance-of-understanding-rest" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thereforme.uk/p/the-importance-of-understanding-rest</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a>

Nyx MirIf you aren’t attending an IRL or virtual protest which conflicts with it, the hybrid virtual artists talk for “And Still It Remains” a <a href="https://vis.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> Exhibit is at 1pm Colorado time.I’d love to see you there! (Just a warning though, I am Terrified of public speaking!) More info and quick zoom registration: <a href="https://www.artworksloveland.org/events/artists-talk-covid-show" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.artworksloveland.org/events/artists-talk-covid-show</a><a href="https://vis.social/tags/DisabilityArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DisabilityArt</a> <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://vis.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCAS</a> <a href="https://vis.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#POTS</a> <a href="https://vis.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dysautonomia</a> <a href="https://vis.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://vis.social/tags/MedicalArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MedicalArt</a> <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SciArt</a>

Tom Kindlon"Emergency departments aren’t trained for Long COVID [& ME/CFS] — and patients are paying the price" by <a href="https://mastodon.social/@thesicktimes" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@thesicktimes</a> <a href="https://thesicktimes.org/2025/06/02/emergency-departments-arent-trained-for-long-covid-and-patients-are-paying-the-price/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://thesicktimes.org/2025/06/02/emergency-departments-arent-trained-for-long-covid-and-patients-are-paying-the-price/</a>Among other things, recommends more medical education for healthcare staff in emergency rooms & elsewhere, plus better access to telehealth<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LC</a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Covidlonghaulers</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longhaulers</a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVIDBrain</a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NeuroPASC</a>1/

Recherches récentes

Options de recherche

Administré par :

Statistiques du serveur :

#MECFS