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#postexertionalmalaise

0 message0 participant0 message aujourd’hui
Public
Tom Kindlon

Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid :

Here again is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome

Also shows all the range of ME / #CFS symptoms #MECFS

From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team
pmc.ncbi.nlm.nih.gov/articles/

@mecfs @longcovid #postexertionalmalaise

Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate Sav
En réponse à Tom Kindlon
Public *
datum (n=1)

If your doctor, or the doctor of someone you know, is still suggesting exercise therapy for CFS or fatigue in general, that recommendation has now officially had peer review label it

Outdated and misleading content; review unsuitable for clinical decisions

cochranelibrary.com/cdsr/doi/1

the full review: hbprojecttalk.wordpress.com/20

main author mastodon.online/@hildabast h/t @tomkindlon

#MECFS#PEMS#PEM
Public
Shantell Powell

I was an athlete for years. I did fitness competitions, trail running, mountain running, obstacle course races, interprovincial bicycling, hiking, and martial arts. I was a professional dancer, an aerialist, a model, and a LARPer. These days, I spend the vast majority of my time sitting down. I go to the gym a couple of times a week and try to go for walks every day, but if I exert too much or think too hard for too long, I'm exhausted.

This is not the normal feeling of being tired after a grueling workout. It's not a mind over matter thing. It's the kind of fatigue you feel when you're sick or dealing with a nasty injury. #LongCovidAwarenessDay #LongCovid #PostExertionalMalaise #ChronicIllness

Public
Insecurity Princess 🌈💖🔥

I'm learning that with long COVID, my body needs additional supplies of vitamins, enzymes, and other bits that it's running short on

I don't like being on so many medications and supplements, but I tried rotating a few off and found the hard way that my body needs something from them

So in case it helps others or someone else found something I haven't yet, these are supplements that I now know I have to take regularly:
Multivitamin — generally useful
Vitamin D — frequently low in long COVID
Magnesium — helps prevent cramps (frequent cramps are a signal of low magnesium)
Molybdenum — essential for breaking down toxins (especially important for vegan, vegetarian, or gluten free diets!)
Biotin — supports skin, nails, and hair growth

Unclear value/result:
Omega-3
Cod liver oil

Haven't yet tried:
Glutathione — haven't tried yet but recommended for fatigue & CFS
Thyroid complex — many long COVID symptoms match hypothyroidism
COQ-10

Non-supplement things:
Hydration, electrolytes, and ample sleep are a crucial foundation
Pacing and resting are essential for chronic fatigue and PEM
#LongCovid #ChronicFatigueSyndrome #fatigue #CFS #PEM #PostExertionalMalaise

Public
Tom Kindlon

Congratulations to Mark Vink on his new paper 👏

Using Exercise Therapy for #LongCOVID Without Screening for Post-Exertional Symptom Exacerbation Potentially Increases the Risks for Patients Who Suffer from it: A Reanalysis of 3 Systematic Reviews

crimsonpublishers.com/rism/pdf

Hashtags:
@longcovid
#PwLC #postcovid #postcovid19 #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2
@auscovid19
#PESE #PostExertionalMalaise #PEM

Public
Tom Kindlon

New interesting UK #longCOVID study:

Physical, cognitive, and social triggers of symptom fluctuations in people living with long COVID

thelancet.com/journals/lanepe/

"Cognitive, social, self-care and physical activities all triggered increased severity across every symptom"

Hashtags:
@longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain
#PostExertionalMalaise
@mecfs
#MyalgicEncephalomyelitis #PEM #MEcfs #CFS #PwME

1/

Screenshot of abstract
Public
Tom Kindlon

🧵
New 24-minute video from #MEAction & Patient-Led Research Collaborative
"Understanding Post-Exertional Malaise - Dr Brayden Yellman"
youtube.com/watch?v=cGQFGgb_Pt

I thought this was very good. Great to have a doctor who gets it

=======
Hashtags:
@longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PostExertionalMalaise
1/

Screenshot from a video showing Dr. Yellman (white man with short hair wearing a tie and sweater) sitting in an office speaking to the camera. Text above: Understanding Post-Exertional Malaise with Dr. Brayden Yellman. Text below: #MedEdMonday Four-part video series created by Patient-led Research Collaborative and #MEAction
Public
Wendy Nather

Had my #Covid and #flu vaccinations on Friday for the fall and winter seasons. I spent yesterday in bed with extremely sore arms, a fever, and a flareup of rheumatoid joint pain all over. It’s as if my #immune system screamed “THE FUCK??” and ran around at super red alert. Today I’m better, but fatigued as with any of my other episodes of #PostExertionalMalaise that I get thanks to my #LongCovid.

Those of us with overclocked immune systems still need the vaccines.

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